Debunking Myths: The Importance of Early Planning and Dementia Awareness
The Importance of Documenting Daily Life Before Changes Occur

Learn how simple details of daily life offer deep emotional comfort and personal legacy for the future.

The Importance of Documenting Daily Life Before Changes Occur
April 24, 2025 01:18 am

Everyday Moments Become Tomorrow’s Legacy


We often think of legacy as the big things—major milestones, profound lessons, or life-altering decisions. But the truth is, it’s the everyday routines that define who we are.


For individuals facing dementia, documenting daily life before memory changes occur can preserve far more than habits. It preserves identity, joy, relationships, and a sense of normalcy.


As a dementia care expert, I’ve seen how small details—what time someone liked their tea, how they folded laundry, their favourite chair in the garden—can bring tremendous comfort later in life.


Capturing these routines early also makes life easier for carers, and it leaves loved ones with a rich, personal legacy.


Why Documenting Daily Life Matters


Daily life reflects more than preference—it reveals:

  • Personality and independence
  • Emotional triggers and calming strategies
  • Cultural, spiritual, and sensory values
  • How someone interacts with their space and routines
  • The foundation for legacy, advance care planning, and memory preservation


The earlier these details are recorded, the more likely they are to be accurate, complete, and meaningful. Waiting too long risks losing important nuances—especially as memory, communication, or decision-making capacity changes.


What “Daily Life” Includes


Daily life isn’t just a schedule. It’s:

  • Morning and bedtime rituals
  • Preferences around meals, music, clothing, and routines
  • Communication style and body language
  • Spiritual or religious practices
  • Hobbies, habits, and social rhythms
  • Emotional regulation cues
  • Small comforts: a blanket, a prayer, a morning walk


Each of these details offers insight into how someone experiences the world—and how they wish to be supported.


With tools like Evaheld, these routines can be documented through written notes, videos, photos, and voice recordings, then stored securely for care teams and family members.


Benefits for Individuals With Dementia


Early documentation helps individuals:

  • Express their identity while they have capacity
  • Maintain dignity and autonomy
  • Preserve emotional regulation strategies
  • Reduce confusion or distress during transitions
  • Capture legacy elements often overlooked


For example, someone may forget their address or spouse’s name—but still remember the steps to making their favourite tea or humming a specific song during their evening routine. These familiar actions support wellbeing long after memory fades.

Emotional Comfort for Carers and Family


For carers, guardians, and the sandwich generation, knowing how to replicate daily routines is invaluable. It reduces stress, helps avoid agitation, and strengthens the relationship between the carer and the person with dementia.


It also preserves a sense of normalcy:

  • “Mum always takes her tea with milk after her walk.”
  • “Dad hums during his shave—he used to sing that same tune to us as kids.”


These everyday insights are often the most meaningful to family, especially after a loved one can no longer communicate them.


Where to Start: Documenting One Day


Begin by recording a typical day while the individual is still cognitively able. Use prompts like:

  • “What’s the first thing you do after waking up?”
  • “What’s something small that always makes your day better?”
  • “Do you prefer breakfast before or after showering?”
  • “What do you do when you feel overwhelmed or tired?”


You can use audio recordings, photos, handwritten notes, or digital entries in Evaheld. Involve the individual as much as possible in the creation of their own care legacy.


Create a Personal Daily Routine Profile


The goal isn’t to create a rigid schedule—it’s to preserve what brings comfort. This might include:

  • Meals and snacks they enjoy
  • Times of day they prefer quiet or social interaction
  • Favourite clothing or textures
  • Mobility and activity preferences
  • Relaxation rituals (music, prayer, tea, journaling)


These details can be incorporated into legacy letters, ethical wills, or care preferences documentation.


Turning Routine Into Legacy


Everyday life tells a story. The way someone moves through their home, what time they make their tea, the kind of music they play while cooking—these details form a living narrative.


Families can preserve daily routines as part of a larger legacy by:

  • Recording short video diaries
  • Scanning handwritten notes about routines
  • Taking photos of meaningful spaces or items
  • Creating a sensory memory box with key items from a morning or evening ritual


These small acts become priceless keepsakes, rich with emotional and sensory memory.

Tips for Reducing Overwhelm


This process should feel meaningful—not burdensome. Try:

  • Capturing just one habit or story per day
  • Using natural moments (while walking, making tea) to reflect
  • Assigning different family members to help document certain routines
  • Revisiting entries periodically and updating as needed


For those who struggle to talk about dementia openly, this can be a gentler way to begin important conversations about planning and support.


Blending With Advance Planning


Documented routines help shape future care decisions. For example:

  • A person who always prays before bed may want this included in end-of-life care
  • A preference for quiet mornings may inform staffing or visit schedules
  • A daily walk or music ritual may become a tool for emotional regulation


You can align daily routines with formal Advance Care Directives or upload these preferences into Evaheld’s secure vault so they’re accessible to the right people at the right time.


Resources to Support the Process


Use:


These resources help families blend medical planning with emotional legacy building—ensuring that daily life is honoured, not overlooked.


In Summary


The way we live day-to-day speaks volumes about who we are. For people facing dementia, documenting daily routines before changes occur is a powerful act of love and clarity. It supports wellbeing, guides carers, and creates a legacy that future generations will cherish.


Start early. Start small. But start—because the routines of today are the memories, comforts, and legacies of tomorrow.

With Evaheld, you can preserve these everyday moments securely and meaningfully—for care, for connection, and for life.


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